Wheat/ gluten is the best studied, but for other foods how can you know if you might actually have an autoimmune issue like celiac disease and not an allergy?
This matters because, if one has an autoimmune disease like celiac, even if there are no noticeable symptoms (silent celiac), you must strictly avoid. Whereas the guidelines for allergies might be to eat at your tolerance level so that you can gradually desensitize.
What if, even below the threshold for symptoms one is causing harm to oneself as in the case of celiac? What if we just don’t know that yet for other foods?
For allergies there is also the possibility of outgrowing the sensitivity so it is recommended to periodically test tolerance, whereas for celiac disease you need to avoid for life.
What if my allergies/ FPIES had been diagnosed as a child?
If I had a chance to outgrow, would I have fit the more typical pattern of the allergic march? Outgrow milk, soy, grains, and possibly newly acquire tree nut and shellfish allergy as an adult. Instead I have multiple (too many!) allergies right now as an adult including typically childhood ones.
Will I outgrow these allergies?
Now that my issues are identified, even as an adult, is there a possibility that I will outgrow these allergies? I don’t have high hopes but time will tell. And if I do outgrow something I will update with celebration!
Can adults grow out of it?
What is the course of treatment In cases of atypical FPIES featuring shock and IgE allergy (my milk problem)? Are IV fluids enough or should EpiPen also be used?
Seems there are still many unknowns with need for further research.